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Join me on my ALS journey! Here you can find all the updates related to my experience with ALS. In addition, I will be creating videos, blog memoirs and stories as well as sharing details about my life. Also I will be sharing content about the disease ALS and ongoing research.

ALS tEAM sHELDON

MY JOURNEY/ HEALTH UPDATES

Keep updated on what’s happening in my life and my journey living with ALS.

MEMOIRS & STORIES

Learn about moments in my life from childhood through recent events.

ALS INFORMATION

What is ALS? Information and resources to get educated on this disease.

RECENT BLOGS, UPDATES & ALS INFO

  • Veterans Law Signed
    Veterans Law Signed

    The president signed the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act into law Jan. 2, after years of advocacy by more than 40…

    READ MORE >>

  • ALS Nexus Conference
    ALS Nexus Conference

    ALS Nexus brings together leaders in the ALS community to connect, collaborate, and change the future of ALS. This is more than a conference –…

    READ MORE >>

  • Feeding Tube Surgery
    Feeding Tube Surgery

    Muscles degenerate and are affected by ALS all over the body, including core life sustaining systems like breathing and swallowing. For a majority of ALS…

    READ MORE >>

MEMOIRS & STORIES
ABOUT MY LIFE

View my growing collection of video vlog memoirs & stories sharing details about my life, as well as content about the disease ALS and ongoing research.

View Memoirs & Stories >>

CHECK OUT MY
GO FUND ME CAMPAIGN!

Please take a minute to check out my Go Fund Me campaign. I am raising funds to offset the addition of a bathroom on the ground floor of my home as well as the purchase of a wheelchair accessible vehicle.

Family Photos Christmas 2024

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