Keep On Keeping On!
This section of my site is dedicated to keeping friends and family updated on my ALS progress. There are lots of medical appointments and the quarterly update that I will post information about here, so that you can always come back to see what’s the latest news. In addition to health updates I’ll also use this section of the site to talk about supporting programs and activities related to my ALS diagnosis. Below you’ll find the latest blog, vlog and stories.You can also visit the health updates section of my blog to see a chronological list of articles.
American Lake VA Hospital
ALS Center of Excellence
Every three months I have what’s called a clinic day at the American Lake VA hospital, ALS center of excellence. This is basically an all day medical appointment where I get to see all of the different support specialists. This includes occupational therapist, neurologist, respiratory therapy, physical therapy, social worker, dietitian and others. Over the course of about six hours I see about 12 different people and address any needs, concerns and do any physical exams necessary. These clinic days are both very uplifting and a little scary each time because the team quantifies and evaluates my ALS progression. I am so thankful to have this resource within an hour of my home and as a bonus it’s very close to a Chick-fil-A which we don’t have in our area.
BLOG > Most Recent: ALS Journey
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Feeding Tube Surgery
Muscles degenerate and are affected by ALS all over the body, including core life sustaining systems like breathing and swallowing. For a majority of ALS…
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Mental Health & Mortality
Making peace with your own mortality is something we all will eventually have to do, some of us sooner than others. Over the past year,…
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DEC 2024 – ALS Update
This is my experience and how my body feels with ALS, and I state it this way because it can feel different for other people…
