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Feeding Tube Surgery
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Muscles degenerate and are affected by ALS all over the body, including core life sustaining systems like breathing and swallowing. For a majority of ALS people, the first symptoms start in the limbs and gradually over time move toward the core of the body and eventually end up impacting muscles in the chest, neck and…
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Mental Health & Mortality
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Making peace with your own mortality is something we all will eventually have to do, some of us sooner than others. Over the past year, coming to terms with the fact that I am terminally diagnosed with a disease that has no treatment, or cure has forced me to think about many things, in new…
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DEC 2024 – ALS Update
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This is my experience and how my body feels with ALS, and I state it this way because it can feel different for other people and from what I’ve been told by the experts, every person experiences this disease a little bit differently.
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ALS Diagnosis Story
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ALS is notoriously difficult to diagnose. From everything that I have read and studied it generally takes more than one year to begin the process of elimination required to come to the ALS diagnosis. This diagnosis is a last resort, as it is required to eliminate all other possible diseases and conditions to the point…